Hearing (Our) Voices

Involving Service Users in Mental Health Research

By Barbara Schneider
Categories: Health, Social Work & Psychology, Psychology, Health & Medicine
Publisher: University of Toronto Press
Paperback : 9781442610101, 196 pages, April 2010

Table of contents

CONTENTS

Acknowledgments
Prologue
1 Introduction
2 What We Did (Method)
3 What We Learned: Communication between People Diagnosed with Schizophrenia and Their Medical Professionals (Results)
4 What We Learned: Housing for People Diagnosed with Schizophrenia (Results)
5 Our Photovoice Project: Searching for Sanctuary: What Home
Means to Me
6 Taking Action: Spreading the Word (Dissemination)
7 Where We Got To (Conclusion)
Epilogue
Appendix A: Interview Questions
Appendix B: Calgary Herald Articles about the Project
Appendix C: Script of a Readers' Theatre Presentation
Notes
References

Description

Hearing (Our) Voices describes two innovative participatory action research projects - one on communication with medical professionals, the other on housing - carried out by a group of people diagnosed with schizophrenia under the guidance of Professor Barbara Schneider. Participants designed the research, conducted interviews and focus groups, participated in data analysis, and disseminated research results through a number of innovative strategies including theatre performances, a documentary film, a graphic novel, and a travelling exhibit.

Emerging from these projects is the central and significant finding that people diagnosed with schizophrenia are caught between their dependence on care and their longing for independent lives. The research presented in Hearing (Our) Voices points to a way to resolve this paradox and transform lives through the inclusion of people diagnosed with schizophrenia in research, in decision-making about their own treatment and housing, and in public discourse about schizophrenia.