The Beautiful Unwanted
Down Syndrome in Myth, Memoir, and Bioethics
A compelling reflection on the possible disappearance of Down syndrome from the point of view of a philosopher and parent.
Description
Prenatal genetic testing has changed the circumstances under which parents choose what pregnancies to carry to term. Some have predicted that as a result of parents’ choices, people with Down syndrome will disappear from our communities in the near future. Chris Kaposy, a bioethicist who has a son with Down syndrome, reflects on parenting his son in the midst of this supposed disappearance.
Writing from a pro-choice, disability-positive perspective, Kaposy presents some of the decades-old bioethical controversies involving children with Down syndrome, illustrating a prehistory of disappearance that has shaped current attitudes toward intellectual disability. Layered throughout this history are elements of Kaposy’s personal experience with his son and family. Transcending monograph and memoir, The Beautiful Unwanted draws creatively upon the past and the present, upon myth, history, science, and personal stories, to present the world of families that include children with Down syndrome from a series of uncommon perspectives. This account encompasses the changeling myths of Newfoundland, the “discovery” of Down syndrome by John Langdon Down and Jérôme Lejeune, and the twentieth-century experience of institutionalization, as well as recent advances in reproductive technology.
We must recognize that we have some control over the future, Kaposy argues, and we must ask what kind of future we want for those who have intellectual disabilities. The Beautiful Unwanted poses this question in a way that is engaging, often bewildering, and always fascinating.
Reviews
“The Beautiful Unwanted is wide-ranging in its discussion, covering historical terrain and past bioethical controversies, but doing so by interweaving personal experiences and continually linking up these discussions with the present day. Since Kaposy doesn’t follow a linear, temporal narrative, he effectively shows how we’ve inherited deeply rooted beliefs and attitudes that inform choices today.” Thomas W. Pearson, author of An Ordinary Future: Margaret Mead, the Problem of Disability, and a Child Born Different